Why do I love being an active advocate in our Type 1 community ?
Until there is a cure – making the most of diabetes treatments and technologies
Iv is been missing in action for most of 2017, moving house in a complicated way took up most of my year ( February 2017 until Christmas ) during that time I did feel quite cut off and isolated from all my T1 colleagues but it had to be done once I’d started.
I was beginning to feel a serious lack of motivation, with a sense of retiring from the world.
Then Minister Harris made that ludicrous decision to only Reimburse Freestyle Libre for children and teens and that’s when the anger set in.
The injustice of it, the discrimination of it, it was a bloody awful decision he made, a totally crazy, senseless, illogical decision.
Following the announcement there was a fast and furious flurry of communication to me from folk in our Type 1 Community.
What should we do ?
I know ! I set up a petition to let people actually do something and be proactive about how they felt, a bit like giving them a voice.
It’s only been 6 days since I opened it and we nearly have 10,000 signatures. Now that’s a lot of voices objecting to the decision that was made and announced by Minister Harris.
Now I’m all motivated and just in time for Thriveabetes 2018.
I love that all of us there on the day talk the same language and live the same kind of lifestyle, we are carb counters, insulin injectors or pumpers, sensor wearers, finger prickers and lickers, all of us on a long time mission to manage the ever changing numbers on a blood glucose meter in order to stay well and more importantly, to stay alive.
It’s a very empowering feeling being among so many folk who live a life just like I do. Great to meet them in person and great to chat with them face to face.
Are you going ? Have you booked your place ?
Do it now before it’s too late.
A selection of photos from Thriveabetes 2016
Thriveabetes Volunteers – Im Back In The Fold
Dr Kevin Moore, Diabetes Consultant / Endocrinologist
discussing weight management and Type 1 diabetes with us.
Joe Solowiejczyk – A Mile In My Shoes – Diabetes Nurse & Educator
Christine, Grainne & Rebecca
Grainne who is as always a huge support to me will assist with the next step for the petition to advocate for an all inclusive reimbursement of the Freestyle Libre for those who need it.
We will also be in touch with Anna Clarke & Keiran O Leary of Diabetes Ireland to request their support.
Dr Anna Clarke – Diabetes Ireland
Let me clearly state right here and now.
Yes ! I opened the petition, but I’ll be working with my peers on this to hopefully bring this issue to a successful conclusion.
Personally right now I don’t need it, but who knows what the future holds. This is not about children with type 1 diabetes and not about adults with type 1 diabetes.
It’s about everyone in our community who needs it #AllInclusive and #WithoutDiscrimination
And all of a sudden I’m back in the fold.
See you all on 24th February in The Red Cow Hotel. Thriveabetes here I come……..
Im Davina Lyon, I’m not a professional, just a person With Type 1 Diabetes sharing experience.
For those who think diabetes is caused by an unhealthy lifestyle let me clarify a couple of things.
I have type 1 diabetes. It’s an autoimmune disease. Nothing I did, or didn’t do caused it and nothing I do will cure it. There’s is currently no cure for Type 1 diabetes.
Type 1 Diabetes happens because our own antibodies attack and destroy an organ in the body. it’s an autoimmune response where antibodies that normally fight disease mistake a part of our body
(the pancreas in this case) as foreign and attack to destroy it.
When those antibodies attack the insulin producing islets in the pancreas we stop producing insulin so we need to inject or pump it.
Without insulin a person with type 1 diabetes would die. At present it is not known what causes this to happen, and there is no cure.
A person with Type 1 diabetes MUST inject or pump insulin to stay alive.
There are many factors that contribute to a diagnosis of Type 2 diabetes so pre judgment of a lifestyle choice is unfair at very least.
A person with Type 2 diabetes, while still producing their own insulin for various reasons their body cannot use it correctly or efficiently.
These people are generally treated with oral medications and sometimes with insulin injections.
Please support me to help raise funds for
Thriveabetes or Diabetes Ireland.
Thriveabetes is completely organised by volunteers. The financial cost of Thriveabetes is subsidized through fundraising, event ticket sales, sponsorship and an adjoining exhibition.
If you would like to make a donation to Thriveabetes – we appreciate every single donation.
To Donate to Diabetes Ireland who have been a huge support to me and our Type 1 Community.
Diabetes Ireland Fundraising link :