Positively  Pumping

All too often in we hear the problems of pumping insulin rather than injecting it, well this is a Positive pumping post 🤗

 

Once upon a time I injected insulin and my only means of checking my Blood Glucose was finger pricking until I discovered the Medtronic guardian, which is a continuous glucose meter only. Calling it a CGM is the short version.

Now its 2 years later and I’m using the  medtronic 640G minimed system, yes I have had a glitch now and then but I can’t imagine going back to how it used to be when i was injecting.

Any glitches Iv had were quickly rectified with a phone call to Medtronic’s 24 hour help line.
I’d recommend my Medtronic equipment to anyone thinking of pumping, and as the fashion trend at the moment is wearing a sensor on the arm Iv put my enlite sensor on my arm too, and with great accuracy results.

 

Now let me just say here that there are different makes of insulin pump im just talking about the one i have because its what i know. I also want to say that im writing this to give others the positive side of pumping and i do NOT personally benefit in any way from the company.

 

Injecting means, no matter where you are or what you are doing if you need insulin you must firstly screw the little pen needle onto the pen and then dial up the units you need and inject, then unscrew the pen needle and pop it into something safe to discard it. Like a little container or something.

 

 

 

When i was on a bus or in the car it was all quite fiddly really, and did take a little time away from conversation or watching for my bus stop.

 

 

Pumping insulin is a whole other ball game, every 3 days i fill my reservoir with insulin, pop it in my pump and change my infusion set, (the site that attaches to the insulin tubing coming from the pump)

In the same scenario, no matter where i am or what i am doing if i need insulin, i just select the amount of insulin i need and press, next and then deliver, with no fiddly bits to dispose of and put away.

Now here is the added bonus, with the pump i wear it also has the CGM, its a clever little relationship that my pump and CGM has.

 

I wish this was my belly, but i can assure you its not.

You see i wear a sensor also A glucose sensor is the part of a continuous glucose monitoring (CGM) system that is inserted under the skin and measures your glucose (sugar) levels.

The CGM is reading my Glucose level all the time and then communicating with my pump, meaning if my glucose level is above range it alarms to let me know and also if my glucose level is low or getting low it will also alarm to let me know.

 

The added safety net here is that if im going or gone low (depending on my settings) because my sensor has told my pump about it, my pump will suspend (meaning stop delivering insulin) until iv corrected and my glucose come back within range.

 

When talking about my glusose when wearing a pump you may have noticed i don’t say blood glucose and thats because a sensor is not reading blood glucose its reading interstitial fluid (ISF).

CGM works through a tiny sensor inserted under your skin, usually on your belly or arm. The sensor measures your interstitial glucose level, which is the glucose found in the fluid between the cells. The sensor tests glucose every few minutes. A transmitter wirelessly sends the information to your pump.

Now there is a bit of learning to be done here but when i started pumping i also received education about how it all works. This is very important because there can be a difference between blood glucose readings the interstitial fluid (ISF) and the main reason for this is that glucose will be in the blood before it is in the interstitial fluid. Once you gain on understanding of this it all falls into place nicely, but you can read more about that by following this link.

I was once that person who said i would NEVER wear and insulin pump. Some of my reasons were that fact that something would be attached to me at all times, and my other reason was that i was afraid that through the night with insulin pumping away i could have a serious hypo and not wake up.

I changed my mind and started to consider it because my family circumstances were changing and i was going to be a Grandma. Fiddling with an insulin pen and pen needles was going to become very awkward and inconvenient.

Ok so lets see how i coped with these.

  • Firstly, i got used to having something attached to me because the benefits vastly outweighed any inconvenience.
  • Secondly, while wearing a CGM as well as a pump, it meant that my insulin delivery would suspend and an alarm would wake me to make sure i could take in glucose / sugar to correct my low, so that was my fear of not waking up to a hypo sorted.

NO ! it has not all been plain sailing, iv had glitches along the way, but then i also had glitches with prefilled pens and needles.

The change has been worth it……………

 

davina-lyon

 

I’m Davina Lyon, I’m not a professional, just a person With Type 1 Diabetes sharing experience.

*IMPORTANT INFORMATION*
For those who think diabetes is caused by an unhealthy lifestyle let me clarify a couple of things.

I have type 1 diabetes. It’s an autoimmune disease. Nothing I did, or didn’t do caused it and nothing I do will cure it. There’s is currently no cure for Type 1 diabetes.

Type 1 Diabetes happens because our own antibodies attack and destroy an organ in the body. it’s an autoimmune response where antibodies that normally fight disease mistake a part of our body
(the pancreas in this case) as foreign and attack to destroy it.
When those antibodies attack the insulin-producing islets in the pancreas we stop producing insulin so we need to inject or pump it.

Without insulin a person with type 1 diabetes would die. At present it is not known what causes this to happen, and there is no cure.
A person with Type 1 diabetes MUST inject or pump insulin to stay alive.

There are many factors that contribute to a diagnosis of Type 2 diabetes so pre judgment of a lifestyle choice is unfair at very least.
A person with Type 2 diabetes, while still producing their own insulin for various reasons their body cannot use it correctly or efficiently.
These people are generally treated with oral medications and sometimes with insulin injections.

Davina Lyon

Co-Founder of Diabetes T One & A Diabetes Life

 

 

 

 The Importance Of Advocacy and Support Within our Diabetes Community 

 

During  this summer  there have been some reasons why I have taken some time to assess my position and activity in our community.

A few things have that happened have made me see how judgmental some of our online support groups can be and i will admit that it has shook me very badly.

Diabetes Community Ireland is an online support group that I am an admin of.

This is a support group where the judgmental will NOT be tolerated, I feel in a private group where only members can see what is posted, we should be able to speak freely as long as we are not being derogatory or slanderous about another individual.

I don’t tend to post very often to support groups, but when i do its generally with what i consider to be good news, a funny incidence, or the fact that Im in trouble and need help, sadly on one of these occasions i was met with judgmental comments that hurt and shook my confidence and self esteem very badly

However after much thought i do feel our community need people just like me, people who are NOT afraid to speak out, people who are not concerned about being politically correct, but are willing to say exactly what is on their mind about any injustice they see happening within our community.

We need people to Advocate together for whatever is needed and lacking in our community.

Diabetes Ireland has published its 2017 report and after reading it carefully, i noticed Kildare still has NO footcare for people with diabetes. In fact i spoke to someone recently who told me about a youth with a varruca on her foot and after seeking an appointment with a foot care professional they were told that in Kildare, only if your over 64 years old can you access free foot care.

This is something I found out a few years ago and sadly nothing has changed since. It seems if one of us hasn’t lost a foot or leg by the age of 64 then they will look at what we are left with at that stage,

NOW IS’NT THAT NICE OF THEM !!!!!

If this is something that you find unaceptable  please write to the TD for your area, you can use “find my TD”  to find out who yours is and make your feelings heard.

 

ADVOCACY

Why ? because sitting back and expecting everything to just come to us without a fight is a pipe dream that we cannot afford to indulge in.

During this summer i have watched another national charity, SBHI go from strength to strength raising funds and producing a very strong awareness video.

No i am not criticising Diabetes Ireland here but i do need to point out that SBHI have a huge support from their very dedicated community, in short the daily interaction the regional branches have with their national charity is impressive and everybody gets on board with advocacy and awareness.

This is something iv found lacking within the Diabetes community and at times those actively advocating can be subject to a lack of support from the community in general.

WE NEED TO SUPPORT OUR NATIONAL CHARITY “DIABETES IRELAND” because its them who back us when we go forward with a campaign or cause we are fighting for.

Its them who create the correct way of moving forward with a campaign or cause.

For me now, going forward has to be done in a way that gets attention for whatever we are fighting for.

There was a time when I had a wish that a very strong and powerful film would be made and aired on our national TV for all to see, but this kind of thing can only be made possible with funding.

We are constantly fighting injustice and discrimination, examples of this is are:

The way freestyle libre was only made available to children and teens but not adults, thats age discrimination.

The type 1 model of care for adults has only just come into being, but the type 2 model of care and the model of care for children has been in existence for quite a while, more age discrimination.

Don’t even get me started on the HSE and foot care. Its like a post code lottery, and even more age discrimination, sure if we reach the age of 64 with 2 legs and 2 feet , only then will we get foot care as part of our overall diabetes care and entitlements, even though feet and legs are a high risk area when it comes to complications of living with diabetes of any type.

 

IM CALLING FOR ADVOCATES TO GET TOGETHER, WORK TOGETHER, AND REALLY MAKE A DIFFERENCE.

IM CALLING FOR EVERY PERSON WITH DIABETES OF ANY TYPE IN IRELAND TO BECOME A MEMBER OF OUR NATIONAL CHARITY.

AND THEN……

IM CALLING FOR OUR TYPE 1 DIABETES COMMUNITY TO INTERACT WITH DIABETES IRELAND AND LET THEM KNOW WHAT WE NEED THEM TO TRY AND ACHIEVE ON OUR BEHALF.

IF YOU HAVE ADVOCACY IN YOUR BLOOD, PLEASE GET IN TOUCH WITH ME BY EMAILING td1ireland@gmail.com

TOGETHER WE CAN MAKE A DIFFERENCE !

I’m Davina Lyon, I’m not a professional, just a person With Type 1 Diabetes sharing experience.

*IMPORTANT INFORMATION*
For those who think diabetes is caused by an unhealthy lifestyle let me clarify a couple of things.

I have type 1 diabetes. It’s an autoimmune disease. Nothing I did, or didn’t do caused it and nothing I do will cure it. There’s is currently no cure for Type 1 diabetes.

Type 1 Diabetes happens because our own antibodies attack and destroy an organ in the body. it’s an autoimmune response where antibodies that normally fight disease mistake a part of our body
(the pancreas in this case) as foreign and attack to destroy it.
When those antibodies attack the insulin-producing islets in the pancreas we stop producing insulin so we need to inject or pump it.

Without insulin a person with type 1 diabetes would die. At present it is not known what causes this to happen, and there is no cure.
A person with Type 1 diabetes MUST inject or pump insulin to stay alive.

There are many factors that contribute to a diagnosis of Type 2 diabetes so pre judgment of a lifestyle choice is unfair at very least.
A person with Type 2 diabetes, while still producing their own insulin for various reasons their body cannot use it correctly or efficiently.
These people are generally treated with oral medications and sometimes with insulin injections.

Davina Lyon

Co-Founder of Diabetes T One & A Diabetes Life

 

Who is Davina Lyon​ – A little insight into me​.
I am first & foremost a family person,​ a mother, ​a ​Grandmother, ​and​ a mother in law.
I love gardening and relaxing in the sun with my 2 dogs.
Iv got several tattoos, some were done before my Type 1 diabetes diagnosis and some after, and im not saying where they are lol.
I dye my hair myself always neglecting to dye a substantial amount of grey in my fringe area just over my right temple.
Iv earned my grey the hard way and im quite proud of that.
Im a big Harry Potter fan, and those who know me say im a bit of a witch.​ Next stop is Hogworts……
Im a firm believer that what you put out , you will recieve 3 fold and this has always proven to be the case for me.

After all​ that,

I am a person with Type 1 Diabetes who was diagnosed at a later stage in life just before my 50th Birthday.
Because of the trauma and crippling fear I had at diagnosis I did everything I could to learn as much as I could as fast as I could about Type 1 Diabetes, it’s causes, treatments, and the technology that could possibly make life just a little easier while living with this disease.
I’m not a shy, shrinking violet type of person, I’m more of a make noise and plenty of it kind of person when I believe passionately in a cause, issue, or injustice.
I do best when surrounded by people I can interact with and although some alone time is welcome, too much of it can make me lose my way a little. Basically I need a sense of purpose, without a purpose I ​tend to ​get a bit​ lost.
I can recover from being let down once, sometimes twice, after that it’s shutdown time and there will never be a third time. My confidence can be shaken easily.
Advocacy:
This came kinda naturally to me because of the kind of person I am but I think it’s really important to remain impartial, so I don’t personally benefit when interacting with companies about various diabetes related topics and technologies.
I think it’s important everyone understands that I also don’t benefit when advocating with a charity who may be sponsored or supported by a company.
In short​,​ nobody pays me and I don’t allow myself to be compromised.!
But I do want the information they provide to me.
Although I’m on a Medtronic 640G insulin pump and CGM combined, I still set up the Libre4All petition which amassed 19,003 signatures because i firmly believed the decision made to make it accessible ​only ​to children / teens​, reimbursed by the HSE​ but not adults, is age discrimination, then I went forward with the campaign with other advocates from our community​ to finalize and deliver it to our government, it was ​most definately ​a team effort.
I am very much a team player and would be the first to say there is no “I” in team. I always endeavor to give credit where it’s due and wouldn’t dream of taking credit for something I didn’t achieve alone. Integrity is a big thing for me.
The Ego:
If an advocate is advocating for ​personal ​credit or recognition then they are advocating for themselves and their status. ​Although this might inevitably get a result for people in our community, we must recognise that is was noise created to bring personal attention for status.​ Th​is is when advocacy​ i​s​ Ego driven.
I believe to be a​ true​ advocate, is to put forward a case on behalf of, or to support along side of others​, as a team​ fighting the good fight together.
I’m most comfortable ​advocating  as​ part of​ a team and if at the end of it all someone appreciates what was done and gives recognition to who achieved it then that’s a bonus, but I hold firmly in my mind that it’s not all about me, it’s about, and for, all of our diabetes community.

From time to time I get asked to try a new product so I can let others know about it in an informative way whether that’s positive or negative.

Other times i get a call to meet and interact with a company who supplies diabetes related stuff.
This week alone Iv had 2 of those phone calls and when I decide whether to accept or decline them I will let you all know about it and my reasons for my decision.
Iv Co Founded ​alongside​ John O Reilly​,
Diabetes T One Facebook page
Which is a private support group
just press join and an admin will admit you.

“My Mantra while living with Type 1 Diabetes is”

I’m Davina Lyon, I’m not a professional, just a person With Type 1 Diabetes sharing experience.

*IMPORTANT INFORMATION*
For those who think diabetes is caused by an unhealthy lifestyle let me clarify a couple of things.

I have type 1 diabetes. It’s an autoimmune disease. Nothing I did, or didn’t do caused it and nothing I do will cure it. There’s is currently no cure for Type 1 diabetes.

Type 1 Diabetes happens because our own antibodies attack and destroy an organ in the body. it’s an autoimmune response where antibodies that normally fight disease mistake a part of our body
(the pancreas in this case) as foreign and attack to destroy it.
When those antibodies attack the insulin-producing islets in the pancreas we stop producing insulin so we need to inject or pump it.

Without insulin a person with type 1 diabetes would die. At present it is not known what causes this to happen, and there is no cure.
A person with Type 1 diabetes MUST inject or pump insulin to stay alive.

There are many factors that contribute to a diagnosis of Type 2 diabetes so pre judgment of a lifestyle choice is unfair at very least.
A person with Type 2 diabetes, while still producing their own insulin for various reasons their body cannot use it correctly or efficiently.
These people are generally treated with oral medications and sometimes with insulin injections.

Since starting on my insulin pump (the Medtronic 640g) a year and a half ago Iv wore it in many ways, hanging on my bra, on my waistband and when showing off was needed I’d pop it on my pocket where it was clearly visible.

( sure that’s the “in” thing now ).

 

The sensor and infusion set was a bit different though and always ended up on my tummy.

I must admit to feeling a little envious of those with the Libre flash glucose meter on the back of the arm and clearly visible when worn with short sleeves.

The enlite sensor is recommended for the tummy but what the hell I thought I’d get with the diabetes fashion and see how it performed on my arm, all visible like the rest of my diabetes colleagues.

Now usually there is a little difference between the readings of a finger prick and the readings from a cgm (continuous glucose meter) This is because the finger prick is testing blood and the cgm is testing Interstitial fluid, or ISF. Glucose hits the bloodstream first and the ISF after that ( hence the delay and difference in results )

However since Sunday when I placed my new sensor on my arm the difference in readings had been reduced. Since Sunday my results are either the same on cgm and finger prick or they are 0.1 in the difference.

Sorry, I never tried this before but delighted to discover now that wearing my sensor on my arm gives a very nearly mirror image of my blood tests by finger prick.

I’ll wear my sensor on my arm from now on.

I’m Davina Lyon, I’m not a professional, just a person With Type 1 Diabetes sharing experience.

*IMPORTANT INFORMATION*
For those who think diabetes is caused by an unhealthy lifestyle let me clarify a couple of things.

I have type 1 diabetes. It’s an autoimmune disease. Nothing I did, or didn’t do caused it and nothing I do will cure it. There’s is currently no cure for Type 1 diabetes.

Type 1 Diabetes happens because our own antibodies attack and destroy an organ in the body. it’s an autoimmune response where antibodies that normally fight disease mistake a part of our body
(the pancreas in this case) as foreign and attack to destroy it.
When those antibodies attack the insulin-producing islets in the pancreas we stop producing insulin so we need to inject or pump it.

Without insulin a person with type 1 diabetes would die. At present it is not known what causes this to happen, and there is no cure.
A person with Type 1 diabetes MUST inject or pump insulin to stay alive.

There are many factors that contribute to a diagnosis of Type 2 diabetes so pre judgment of a lifestyle choice is unfair at very least.
A person with Type 2 diabetes, while still producing their own insulin for various reasons their body cannot use it correctly or efficiently.
These people are generally treated with oral medications and sometimes with insulin injections.

I wrote this for a friend who was only newly diagnosed with type 1 diabetes and she was struggling.

 

When she explained to me how she was feeling it brought me right back to when I was first diagnosed. I wanted her to see that she wasn’t alone and that I did understand.

Rising From The Ashes, with #Type1 #Diabetes

 

There have been many times in life when iv had to rise from the ashes, and each time iv done it, it’s always been with a sense of where iv been and where I’m going. Each time I rose in the past, iv had a network of friends and family behind me that I was somewhat sure of.

 

Upon my Type1 diagnosis, in the ashes is where I honestly ended up, this was one fall I’d never experienced before, and I knew beyond a shadow of a doubt that rising this time, would be one of the most difficult tasks I’d ever taken on.

 

Yes, learning the regime and lifestyle I now had follow was going to be challenging, but that was just maths. Counting carbs, working with ratios I’d been given, following sick day rules, being constantly watchful all day and all night, clock watching, always travelling with food, insulin pens, BG meter, test strips, a hypo kit and other hypo fix before things get too bad. Always thinking of food and when your next meal or snack is. Planing every detail of my day in order to remain stable. Its not in any way easy, but it’s do-able.

All this information initially comes from our diabetes team, in what ever hospital we are attending.

 

What they don’t tell you about:

From the first day of using insulin, newly diagnosed, and now at home ‘flying solo” the absolute crippling fear that sits firmly in the very front of your mind every single moment of every single day. “The fear of having a hypo” we know what can happen, we know what to be aware of, and yes we are told what to do.

Then bedtime comes………

Have you ever been terrified to close your eyes, in case you don’t Wake ?

Well that’s our first hurdle, it’s about then, we, “in our logical thinking” feed our diabetes. We automatically think first and foremost as a matter of priority about waking up, that’s all, just wanting to open our eyes to start another day.

At first we think going to bed high, is going to achieve this. It’s only later we learn that this practice is just as dangerous as being too low.

It’s that balance we need, I call it “walking the wire”

 

The isolation:

This feeling comes with the judgemental glances, the comments, the disapproving noises and gasps. The O My God are you really going to test in public? The, seriously are you going to inject in a restaurant? The noises of intolerance people make as you assess the food in front of you in order to work out your dose.

Yes, they would be happier if you took yourself off to the public toilet, full of germs and bacteria to inject like an addict, just so they can be comfortable.

The isolation happens, when we decide to hibernate and shield ourselves from this kind of behaviour, or worse again do what they require we do, and do it somewhere else.

The insult added to this, is they are usually the very same people who find us, in a dark and lonley place, crying constantly. That’s when they swoop in and say “you know depression and diabetes is quite common” they might even offer to drive you to the GP to talk about depression, but they never helped when pushing you into that corner.

This is something, that only someone diagnosed, or a carer of someone diagnosed, with type 1 diabetes will understand.

 

The blissfull ignorance & hurt:

This is when you make a decision one day, to help your friends etc to understand. Your all prepared for the conversation, when the opportunity arises. Your going to explain in simplistic terms, your going to educate gently. If we are totally honest we are not doing this to help them, we are doing it to help ourselves to fit back in to a place we once belonged.

You seize your your opportunity, and quickly realise there’s a lack of interest, you feel sad and defeated. Lost and lonely.

Iv spoken to many people who have gone though this, and yes their friendships have changed.

They feel more comfortable among those who speak the same language and live the same type of lifestyle. This way there is no need for explaining, and no need for justifying why we do the things we do.

 

This is why our online community is of so much importance, & Facebook is invaluable, we talk and exchange ideas and experiences, we may not have met face to face, but we are friends, because these people understand, learn, tell us about everything, and we don’t feel isolated or judged. These people put out their hand and help us up out of the darkness and isolation, until we can someday stand alone and help another going through the same thing.

 

Why am I posting this now ? Because if this is how you are feeling then I’m hoping you see that you too can be that Phoenix rising out of the ashes……..

 

 

 

Im Davina Lyon, I’m not a professional, just a person With Type 1 Diabetes sharing experience.

*IMPORTANT INFORMATION*
For those who think diabetes is caused by an unhealthy lifestyle let me clarify a couple of things.

I have type 1 diabetes. It’s an autoimmune disease. Nothing I did, or didn’t do caused it and nothing I do will cure it. There’s is currently no cure for Type 1 diabetes.

Type 1 Diabetes happens because our own antibodies attack and destroy an organ in the body. it’s an autoimmune response where antibodies that normally fight disease mistake a part of our body
(the pancreas in this case) as foreign and attack to destroy it.
When those antibodies attack the insulin producing islets in the pancreas we stop producing insulin so we need to inject or pump it.

Without insulin a person with type 1 diabetes would die. At present it is not known what causes this to happen, and there is no cure.
A person with Type 1 diabetes MUST inject or pump insulin to stay alive.

There are many factors that contribute to a diagnosis of Type 2 diabetes so pre judgment of a lifestyle choice is unfair at very least.
A person with Type 2 diabetes, while still producing their own insulin for various reasons their body cannot use it correctly or efficiently.
These people are generally treated with oral medications and sometimes with insulin injections.

 

 

Please support me to help raise funds for Diabetes Ireland.

Diabetes Ireland have been a huge support to me and our Type 1 Community.

Diabetes Ireland Fundraising link :

 

https://www.diabetes.ie/fundraising/donate/

 

 

Getting High with Coffee and #Type1Diabetes

Back in the early days of living with Type 1 i was always baffled by the fact that when I woke my blood glucose would be 5-6 but an hour after my morning cup of coffee my blood glucose would have risen to anything between 10 and 13 and that’s without food.

My morning coffee is like my “On” switch and without it very little happens. It’s my function button, fuel for my daily journey.

Once I realised my dilemma and pinpointing what was happening I made some adjustments to my diabetes management. Now if your thinking I gave up coffee you’d be sadly mistaken, that would have resulted in either becoming a hermit or becoming people intolerant when I’m out.

My trick, and it works for ME ! While the kettle is boiling or the coffee pot is doing its thing, I bolus (inject with novo rapid) so it’s starting to kick in when I’m drinking my very necessary morning cuppa, with no after spike …

But let me remind you here everyone is different so speak to your diabetes health care professional about what YOU should do

But why does coffee cause a blood glucose spike?

One theory put to me was that coffee blocks insulin. The majority of articles Iv read state that Type 1 diabetics should avoid caffeine as it makes insulin less responsive, causing sugars to rise.

Another theory as to why it raises Blood Glucose is that the Caffeine causes an instant Adrenal response, this is one of the glands in the body which is responsible for the “flight or Fight” response. So when we drink coffee a hormone called Cortisol an Adrenalin is released into the blood stream which will have a slight blocking effect on circulating insulin take up. Also Cortisol and adrenalin and other fight of flight hormones released by the Adrenal glands will have a short term sudden impact on raising Blood Glucose, this is the main reason for a raise in Blood Sugar.

In not a professional just a coffee drinking person with type 1 diabetes

Davina

 

Im Davina Lyon, I’m not a professional, just a person With Type 1 Diabetes sharing experience.

*IMPORTANT INFORMATION*
For those who think diabetes is caused by an unhealthy lifestyle let me clarify a couple of things.

I have type 1 diabetes. It’s an autoimmune disease. Nothing I did, or didn’t do caused it and nothing I do will cure it. There’s is currently no cure for Type 1 diabetes.

Type 1 Diabetes happens because our own antibodies attack and destroy an organ in the body. it’s an autoimmune response where antibodies that normally fight disease mistake a part of our body
(the pancreas in this case) as foreign and attack to destroy it.
When those antibodies attack the insulin producing islets in the pancreas we stop producing insulin so we need to inject or pump it.

Without insulin a person with type 1 diabetes would die. At present it is not known what causes this to happen, and there is no cure.
A person with Type 1 diabetes MUST inject or pump insulin to stay alive.

There are many factors that contribute to a diagnosis of Type 2 diabetes so pre judgment of a lifestyle choice is unfair at very least.
A person with Type 2 diabetes, while still producing their own insulin for various reasons their body cannot use it correctly or efficiently.
These people are generally treated with oral medications and sometimes with insulin injections.

Please support me to help raise funds for
Thriveabetes or Diabetes Ireland

Please support me to help raise funds for
Thriveabetes or Diabetes Ireland.

If you would like to make a donation to Thriveabetes – we appreciate every single donation.Thriveabetes is completely organised by volunteers. The financial cost of Thriveabetes is subsidized through fundraising, event ticket sales, sponsorship and an adjoining exhibition.

http://thriveabetes.ie/index.php/donate-2/

Diabetes Ireland have been a huge support to me and our Type 1 Community.

Diabetes Ireland Fundraising link :

https://www.diabetes.ie/fundraising/donate/

 

What Happens When We Just Cant “Do” Diabetes Anymore ?

I’m writing this for those who think blood glucose in double figures is alright.
I’m writing this for those who think the complications of regular high blood glucose won’t affect them.
I’m writing this for those who don’t comply with their treatment, those who think living dangerously won’t have consequences in the future.

 

We get diagnosed, we deal with the shock and trauma of the diagnosis, we are enrolled in diabetes education, introduced to insulin and other medications, we deal with information overload and then if we are wise we do whatever we can to hook up and meet or chat online with others just like ourselves.

After crying many tears i started the journey of managing my type 1 diabetes, YES, i said manage and not control.
Im a firm believer that i never control my type 1 as there are so many  things in my daily life that influence my blood glucose like stress, worry, hot weather, cold weather, being ill, exercise, and general daily exertion to name but a few.
I was taught how to MANAGE the ever fluctuation highs and lows of my type 1 diabetes, and do what ever i could to keep my blood glucose numbers within the recommended range.

But…… what happens when we just cant “Do” diabetes anymore ?

I get tired of the constant daily work, “yes work” thats involved in the management of type 1 diabetes. I want to eat like everyone else and not have to inject or pump insulin to cover that food or drink.

Personally from the day i was diagnosed my feeling was that “food was the problem” i couldnt just eat it and get on with what i had to do.
I clearly remember back in the early days of diagnosis, putting my lunch on the table and the Novo rapid pen beside it, all ready to inject and eat.
I looked at that picture for a very long time ( maybe an hour and a half ) threw my lunch in the bin and then put away the insulin pen.
Sorted, i thought !

However nothing was sorted because even without food blood glucose can rise for many reasons, sure isnt that why we take Lantus as well and novo rapid.

Lantus is our basel ( background ) insulin, the stuff that keeps us balanced between meals.

Novo rapid ( fast acting insulin ) doesn’t just cover and help process the carbs I eat, it also brings down and corrects my blood glucose if it’s high because of illness or the many other things that rise it daily.

I wasnt long about copping on though because ketones then became an issue, not to mention the fact that i got extremely hungry.

I often hear people say they dont want to hear the scary stuff, you know, the stuff about what happens if we dont keep the blood glucose numbers within the recommended range at least most of the time, if we just dont play by the rules.

Question for you …..
when someone learns to drive a car on the road, should they be made aware of the scary stuff, you know like “speed kills” “never drink and drive” “dont use your mobile phone while driving” ? of course they should because that should make them more cautious and aware of the dangers of not following the rules.

NOW !
Why on earth are newly diagnosed people not made painfully aware on the day of diagnosis, of the dangers of not managing their diabetes?

Sight problems, healing problems, heart problems, stroke, dental problems, infections, kidney failure, diabetic ketoacidosis (DKA), Coma and death, etc.

I get really fed up and so tired of it all, my pump alarm waking me and my family during the night, the alarm when i go for a walk or even just hoover the house and it saying im going low.
The pump alarm repeating “high alert” after iv eaten chinese takeaway even though iv bolused correctly.

I often feel my pump is so unforgiving and judgmental, i feel like pulling it off sometimes and smashing it against a wall or f -c-ing it out a window, and then just eat what i want and not inject insulin, but what would i gain from that ?

Yes its true, i could swop my insulin pump or insulin pen for dialysis, blindness, a prosthetic leg or two and awfull shoes on them.

I could swop my insulin for a cardiac problem that wouldnt allow me to even walk to the other side of a room.

I could have a stroke and be paralised, never ever again having independance.

I could go into a coma and not be the same person waking up, if i woke up that is.

Death ? doesnt actually worry me because i wouldnt be here anymore, its the thought of ending up with no quality of life and no independance that keeps me on the straight and narrow, most of the time.

Now before anybody starts to tell me that this simply does not happen, let me tell you it does and i know these people.

Its when i take a few moments to calm down and think of the consequences of my actions that i reluctantly fall back in line and dutifully count my carbs and inject or pump my insulin.

I want quality of life to do the things that i enjoy the most.
Its ok to rebel a little, but talk to someone who understands what your feeling and then get back on track.

Stupidity is not an attractive trait …….
Manage your diabetes correctly

 

 

 

Im Davina Lyon, I’m not a professional, just a person With Type 1 Diabetes sharing experience.

 

 

*IMPORTANT INFORMATION*
For those who think diabetes is caused by an unhealthy lifestyle let me clarify a couple of things.

I have type 1 diabetes. It’s an autoimmune disease. Nothing I did, or didn’t do caused it and nothing I do will cure it. There’s is currently no cure for Type 1 diabetes.

Type 1 Diabetes happens because our own antibodies attack and destroy an organ in the body. it’s an autoimmune response where antibodies that normally fight disease mistake a part of our body (the pancreas in this case) as foreign and attack to destroy it.
When those antibodies attack the insulin producing islets in the pancreas we stop producing insulin so we need to inject or pump it.

Without insulin a person with type 1 diabetes would die. At present it is not known what causes this to happen, and there is no cure.
A person with Type 1 diabetes MUST inject or pump insulin to stay alive.

There are many factors that contribute to a diagnosis of Type 2 diabetes so pre judgment of a lifestyle choice is unfair at very least.
A person with Type 2 diabetes, while still producing their own insulin for various reasons their body cannot use it correctly or efficiently.
These people are generally treated with oral medications and sometimes with insulin injections.

Please support me to help raise funds for
Thriveabetes or Diabetes Ireland

Please support me to help raise funds for
Thriveabetes or Diabetes Ireland.

If you would like to make a donation to Thriveabetes – we appreciate every single donation.Thriveabetes is completely organised by volunteers. The financial cost of Thriveabetes is subsidized through fundraising, event ticket sales, sponsorship and an adjoining exhibition.

http://thriveabetes.ie/index.php/donate-2/

Diabetes Ireland have been a huge support to me and our Type 1 Community.

Diabetes Ireland Fundraising link :

https://www.diabetes.ie/fundraising/donate/

Every now and then, there’s a “Light Bulb Moment” 
That moment when everything looks a little clearer …….
 

My first lightbulb moment after being diagnosed with type 1 diabetes was finding myself at a DAFNE course with others just like myself. Living with type 1 diabetes.
It felt a little like being adopted into a club of like minded people. People I could communicate with and we all knew exactly what we were talking about, “daily life with type 1 diabetes”
 
It made me feel accepted, understood, and then by the end of the week, educated…..
 
My second lightbulb moment was when I attended my first conference for people with type 1 diabetes. That was Thriveabetes 2015. I had no idea what to expect but the idea of being among so many people with type 1 always feels like a comfort.
 
There were so many people I knew online and chatted to regularly, I could see their profile pictures so it all felt familiar but meeting them in person was brilliant.
 
Those who arrived the night before met up for drinks in the lounge and chatted and laughed getting to know each other. That’s when I first saw the Medtronic 640G integrated insulin pump. ” funny the things we chat about over drinks”.
 
The next morning I arrived early for breakfast where I got chatting to a Medtronic rep as luck would have it.
 
As people arrived I felt excited as I got to meet them in person and watching the event fall into place there was a feeling of relief that everything was going to the plan Grainne had set out in her vision.
 
Joe Solowiejczyk diabetes educator and person with type 1 diabetes, http://www.parentingdiabetickids.com/ask-our-team/meet-our-team/joe-solowiejczyk/
who was one of the Speakers talked about personally living with T1 and told that story in such a humorous way.
 
Other speakers covered, education, statistics, what we should be aiming for and how best to achieve it, latest on research and latest technology.
 
There ware separate groups for adults living with type 1 and parents of children with type 1. Among the renowned speakers we had a representative from JDRF, and Dr Kevin Moore, Consultant Endo from Naas and Tallaght Hospital diabetes clinics.
 
At lunch I saw a pebble watch with nightscout, something I’d never heard of before and there it was right in front of me, absolutely fascinating, and I was told where I could get more information about it.
 
It was a day full of fact from professionals and information from other people with type 1 diabetes about useful groups and where to find the very latest info, a day full of learning, education and making friends.
 
I arrived, and attended as a part of my T1 community, I left at the end of the day fully motivated and feeling like nothing was beyond me.
 
That day I became a diabetes advocate ….
 
This year I’m really looking forward to meeting up with everyone again, some new people, some Iv met last year, and some who have become treasured colleagues, friends and role models.
 
 
Davina
Im Davina Lyon, I’m not a professional, just a person With Type 1 Diabetes sharing experience.

 

*IMPORTANT INFORMATION*
For those who think diabetes is caused by an unhealthy lifestyle let me clarify a couple of things.

I have type 1 diabetes. It’s an autoimmune disease. Nothing I did, or didn’t do caused it and nothing I do will cure it. There’s is currently no cure for Type 1 diabetes.

 

Type 1 Diabetes happens because our own antibodies attack and destroy an organ in the body. it’s an autoimmune response where antibodies that normally fight disease mistake a part of our body
(the pancreas in this case) as foreign and attack to destroy it.
When those antibodies attack the insulin producing islets in the pancreas we stop producing insulin so we need to inject or pump it.

Without insulin a person with type 1 diabetes would die. At present it is not known what causes this to happen, and there is no cure.
A person with Type 1 diabetes MUST inject or pump insulin to stay alive.

There are many factors that contribute to a diagnosis of Type 2 diabetes so pre judgment of a lifestyle choice is unfair at very least.
A person with Type 2 diabetes, while still producing their own insulin for various reasons their body cannot use it correctly or efficiently.
These people are generally treated with oral medications and sometimes with insulin injections.

Please support me to help raise funds for
Thriveabetes or Diabetes Ireland

 

Please support me to help raise funds for
Thriveabetes or Diabetes Ireland.

If you would like to make a donation to Thriveabetes – we appreciate every single donation.Thriveabetes is completely organised by volunteers. The financial cost of Thriveabetes is subsidized through fundraising, event ticket sales, sponsorship and an adjoining exhibition.

http://thriveabetes.ie/index.php/donate-2/

Diabetes Ireland have been a huge support to me and our Type 1 Community.

Diabetes Ireland Fundraising link :

https://www.diabetes.ie/fundraising/donate/

Bedtime and That Horror Moment of Injecting NovoRapid instead of Lantus

Picture this. I’m in the dressing gown having a neighbour hood watch conversation with my daughter after a meeting we attended. Winding down and heading for the duvet, just had to take my 22 units of Lantus.

Dialled up the 22 units and injected, that’s when I realised I’d just injected 22 units of Novo Rapid at 11.30 at night. Il Never forget the initial panic, even with my biggest meal followed by desert Iv never needed 22 units.
Holy shit is what I said, my daughter on the other hand had more choice language. On top of this it’s the night before a big food shop so the house wasn’t exactly loaded up with goodies.

A bottle 1/2 full of flat coke was plonked in front of me. Drink it she ordered as she got into the car fully dressed for bed and headed to the nearest shop, she ran around grabbing bread rolls, jelly sweets, cake, and basically full sugar anything like a mad woman hell bent on a midnight feast with a deadline. 

 
No ! 110 gms of carbs as pure glucose wasn’t an option, the last thing needed here was a huge big fast high, I needed stability, some fast acting along with some slow release carbs. “Steady as she goes”

Once the horror of what I’d just done subsided, I started to calculate just how much I’d have to eat to cover it. My insulin to carb ratio was 5/1 that’s 1 unit of rapid to every 5 gms of carbs eaten.
Now in reverse 22 units of novo rapid using a 5/1 ratio, that’s 22 ✖️ 5 = a massive 110gms of carbs for supper right before bedtime. ( chocolate is not advised for treating low blood sugar because it’s got a high fat content. The fat content slows down the release of glucose into the blood stream, but hours after eating it you have a delayed blood sugar spike with no insulin on board to deal with it ) and so it becomes correction time.

With paper and pen at the ready and trying to keep the sheer panic at bay, I wrote down all the carbs I was now eating and drinking until it added up to that magic number (110) by the time I’d finished eating i had a tummy pain and just wanted to be sick.

That’s not where it ends though, the novo rapid would be active in my system for about 2 and 1/2 hours that’s 2am. So going to bed even after scoffing all that still wouldn’t be safe even if I could lie down with all that just sitting in there.

At 2am that morning my Blood Glucose was 4.5 I had to eat even more. 2 rice cakes and a coffee. I was in bed just before 3am and I did not feel at all well.

Note to self, concentrate when I’m about to inject at any time. This is one of those mistakes I will only make once ……….

 
Davina.
Im Davina Lyon, I’m not a professional, just a person With Type 1 Diabetes sharing experience.

*IMPORTANT INFORMATION*
For those who think diabetes is caused by an unhealthy lifestyle let me clarify a couple of things.

I have type 1 diabetes. It’s an autoimmune disease. Nothing I did, or didn’t do caused it and nothing I do will cure it. There’s is currently no cure for Type 1 diabetes.

 

 

Type 1 Diabetes happens because our own antibodies attack and destroy an organ in the body. it’s an autoimmune response where antibodies that normally fight disease mistake a part of our body
(the pancreas in this case) as foreign and attack to destroy it.
When those antibodies attack the insulin producing islets in the pancreas we stop producing insulin so we need to inject or pump it.

Without insulin a person with type 1 diabetes would die. At present it is not known what causes this to happen, and there is no cure.
A person with Type 1 diabetes MUST inject or pump insulin to stay alive.

There are many factors that contribute to a diagnosis of Type 2 diabetes so pre judgment of a lifestyle choice is unfair at very least.
A person with Type 2 diabetes, while still producing their own insulin for various reasons their body cannot use it correctly or efficiently.
These people are generally treated with oral medications and sometimes with insulin injections.

Please support me to help raise funds for
Thriveabetes or Diabetes Ireland

 

Please support me to help raise funds for
Thriveabetes or Diabetes Ireland.

If you would like to make a donation to Thriveabetes – we appreciate every single donation.Thriveabetes is completely organised by volunteers. The financial cost of Thriveabetes is subsidized through fundraising, event ticket sales, sponsorship and an adjoining exhibition.

http://thriveabetes.ie/index.php/donate-2/

Diabetes Ireland have been a huge support to me and our Type 1 Community.

Diabetes Ireland Fundraising link :

https://www.diabetes.ie/fundraising/donate/


#DiabetesBlog #Hypoglycemia #DeGlucofied How does it feel ?

“Drunk without the Alcohol” by a #T1D

Sugar is not the cause of #Diabetes. Without sugar people with diabetes would be in serious trouble. #Sugar is treatment for #Hypoglycemia #Hypos, People with #Type1Diabetes and some people with #Type2Diabetes need sugar just like they need #Insulin to survive. Sugar to a #Diabetic is just as needed and just as important as our insulin is.

De-glucofied ( my new word ) “What happens in the hypo stays in the hypo”

Whenever I meet parents of children, not long diagnosed with type 1 diabetes, especially parents of young children one of the first questions they ask is, “what does a hypo or a low blood sugar feel like” of course they read the symptoms, but what it actually feels like is a whole other thing.

Sometimes children don’t seem to have listened to what’s been said to them, sometimes they just sleep for hours after a low, maybe have a tummy pain or upset tummy, they might be weepy, or feel a bit emotionally soft, seem confused, seem awkward, uncordidated or can’t remember. Well this is how I feel during a low, after a low, and sometimes for quite a while afterwards.

I woke up during one nights sleep and I knew straight away this wasn’t good, I actually felt confused making my way to the kitchen and tried to maintain my balance while keeping the wall real close.
Because I was more than a tad disorientated when I got to my meter I spilled the tub of test strips on the floor and they seemed to have taken flight. There’s a visible flush going on, with a trickle of sweat running from my hairline, my clothes feel damp, o wait they are damp with sweat, and I know that someone is talking to me because their lips are moving, but Iv no idea what they’re saying. I treated that low heavily, my reading was 2.3 and I slept deeply for hours after it.

Nobody can understand that “no mans land” that I am in when my blood sugar is low, except another person with diabetes who’s had a low or hypo.
Totally deglucofied, and because of that, strangely unresponsive, and when I say unresponsive I don’t mean unconscious.
One moment I am walking around, chatting and laughing, thinking things through, planning, working, or just cooking the dinner, when i slip silently into, not thinking and just doing.
I go from walking with purpose and direction to walking and not knowing why or where Im going.
I go from chatting and laughing to seeing people around me chatting, i hear sounds but they don’t make sense, it’s like quite noise and my brain can’t figure out where it’s coming from. Afterwards when iv treated the low BG with glucose or sugar of some sort, I find people saying “remember I told you that” ? Mmm NO. Because “what happens in the hypo stays in the hypo” and does not get remembered.

For all the following reasons hypos or lows can be very frightening and bit dangerous.
It would be easy to fall and hurt myself.
It would be easy to say or do something and have no recollection of it afterwards.
It’s easy to put something down and not be able to find it.
It’s easy to eat for survival and not measure, count or care about portion size or carb count.
It would be easy to walk out in front of a car when crossing a road, because judgment is gone.
if im walking there’s a strange but not nice feeling of walking on air, like the ground beneath my feet just doesn’t exist, impact as I walk is gone, tripping and falling would be so easy

Because all of these things are completely out of our control when our blood sugar drops too low and that’s just one side of the coin.

The treatment (not treat ) is sugar / glucose in the form of a full sugar drink or lucozade, jelly beans, jelly babies, skittles, basically anything high in sugar or glucose.

It’s important to remember that when you treat a headache, a hangover, or something else that’s making you feel rotten, you don’t just pop a pill and feel instantly better, the same applies to popping in the glucose for a hypo, it’s not an instant “feel better” it takes time to come back to normal.

Treating a hypo in no different, yes we treat it, and get those blood sugar numbers back within range, but the “feel good” feeling dosent return instantly because there’s an aftermath. The fact that you’v dropped low means it’s effected all of your body and it takes quite a while for the sugar rush to reach everywhere and get us back on track.
If your anything like me all of this is followed with a dreadfull headache, an upset tummy, and a feeling of exhaustion that leaves me fit for nothing but sleep.

It’s actually worse than being very drunk, it’s downright frightening.
My Balance, sight, & sense of direction are all effected,

Davina.

 

 

Im Davina Lyon, I’m not a professional, just a person With Type 1 Diabetes sharing experience.

 

 

*IMPORTANT INFORMATION*
For those who think diabetes is caused by an unhealthy lifestyle let me clarify a couple of things.

I have type 1 diabetes. It’s an autoimmune disease. Nothing I did, or didn’t do caused it and nothing I do will cure it. There’s is currently no cure for Type 1 diabetes.

 

Type 1 Diabetes happens because our own antibodies attack and destroy an organ in the body. it’s an autoimmune response where antibodies that normally fight disease mistake a part of our both (the pancreas in this case) as foreign and attack to destroy it.

When those antibodies attack the insulin producing islets in the pancreas we stop producing insulin so we need to inject or pump it.

Without insulin a person with type 1 diabetes would die. At present it is not known what causes this to happen, and there is no cure.
A person with Type 1 diabetes MUST inject or pump insulin to stay alive.

There are many factors that contribute to a diagnosis of Type 2 diabetes so pre judgment of a lifestyle choice is unfair at very least.
A person with Type 2 diabetes, while still producing their own insulin for various reasons their body cannot use it correctly or efficiently.
These people are generally treated with oral medications and sometimes with insulin injections.

Please support me to help raise funds for
Thriveabetes or Diabetes Ireland

Please support me to help raise funds for
Thriveabetes or Diabetes Ireland.

If you would like to make a donation to Thriveabetes – we appreciate every single donation.Thriveabetes is completely organised by volunteers. The financial cost of Thriveabetes is subsidized through fundraising, event ticket sales, sponsorship and an adjoining exhibition.

http://thriveabetes.ie/index.php/donate-2/

Diabetes Ireland have been a huge support to me and our Type 1 Community.

Diabetes Ireland Fundraising link :

https://www.diabetes.ie/fundraising/donate/