Everything I was, I carry with me. Everything I will be, lies waiting on the road ahead. – update -Equality for all people with #Type1Diabetes

 

 

 

Everything I was, I carry with me.
Everything I will be, lies waiting on the road ahead.

There was a time when Type 1 Diabetes was not a part of my life, and then came the diagnosis.
Now future diabetes advocacy lies waiting on the road ahead for me and everyone else who wants to make a difference.

Since we set up the petition –
Equality for all people with #Type1Diabetes.
Reimburse Freestyle Libre for adults and children equally.

It all started with an announcement by Minister Harris which left me with a feeling of discrimination being imposed on us adults with type 1 diabetes.

The anger set in when the reality and gravity of this decision finally began to become obvious. The reality that only a few hundred children would actually benefit for Libre reimbursement by the HSE and NOT the thousands that the media headlines actually reported.

A petition was set up to give people an opportunity to voice their feelings and do something about it.

Since then !…….
The petition has nearly 13,000 signatures and many comments & reasons for signing. Please sign it if you have not already done so.

https://www.change.org/p/hse-health-service-executive-equality-for-all-people-with-type-1-diabetes?recruiter=63600589&utm_source=share_petition&utm_medium=copylink&utm_campaign=share_petition&utm_term=facebook_link

 

So what next I thought, as the signatures reached 5,000 and then 10,000.

I must admit it all felt exciting so as usual when something big is happening in our community I got in touch with Grainne Flynn, a fellow type 1 who’s advice, insight and and ideas are always up there where I wouldn’t normally think to reach.

I always feel like I’m riding the crest of a wave when advocating alongside Grainne. I have strong suspicions that Phil who is Grainne’s husband plays a huge roll in the advocacy work we all do as it begins to reach its peek and he does it so quietly, that we, outside of their family circle don’t know it, or even think to give him the recognition he probably deserves. So …. Thanks Phil !

 

Then Liz Murphy, a fellow type 1 who’s knowledge, of the “how to” go about something is a real insight. At those times when a plan is formulating keeping a pen and paper handy is a must when talking to Liz.
Information just rolls off Liz’s tongue and it’s not always stuff I understand. Research is always needed after our conversations. Liz is a very knowledgeable lady, especially about all things political and their workings.
Working with Liz ? Lol can sometimes feel like doing a degree after a crash course in a subject, but advocating with these two individuals is always a buzz and exhilarating. They are achievers who inspire me to achieve also.

 

#1 in 15 people in Ireland have Diabetes. 10% of those have Type 1 Diabetes

 

Once a plan of action is considered the next call is to Anna Clarke ( pictured centre ) from Diabetes Ireland.

Now this is an important move. They are often already in negotiation in relation to something we feel strongly about and it’s important not to cause any difficulty in those negotiations.  To me personally, getting their support for whatever advocating I’m doing at the time is important. As a community with diabetes their support is vital to us and any of our advocacy projects. I feel that without Diabetes Ireland in our corner we are just fighting.
With Diabetes Ireland in our corner we are on a journey, a mission to succeed no matter how long it takes.

I didn’t always understand how this works but I do now. We as a community are taken more seriously with their support. Diabetes Ireland are in turn stronger when working on our behalf if we are behind them.
Their advice will always set us on a path in the right direction.

I once jokingly said to Anna, “I don’t know how I get myself into these things”. It was right before our delegation went in to Leinster house to address ministers and boy was i nervous.  Anna and Kieran were with us that day and in the weeks before it as we prepared. Her answer to me was that I was passionate, and it was my passion that got me there. She wasn’t wrong, and I felt enormously flattered that she saw me in that way.

I always feel respected and that I’m taken seriously by Anna and the Diabetes Ireland Team, but I’d understand if in the past they thought I was a pain in the ass lol.

 

Frank O Rourke TD in north Kildare is my “go to” man. Frank has worked and continues to work tirelessly on our behalf.

 

 

 

Liz has a “go to” TD also, that’s Mary Butler TD in Waterford where Liz lives, and between Frank and Mary they are sure to bring our issues forward to Minister Harris. It was these two TDs that got our delegation in to Leinster house in 2016 to address TDs about our diabetes services.

 

It’s primarily these two individuals who are continuously working on our behalf with parliamentary questions and topical issues in the Dail.

Grainne, Liz and myself have recently done radio interviews and have had journalists publish our views as diabetes advocates in papers in our local areas.

There have been blogs written, and our thoughts and feelings published on social media.
we continue to keep the need for reimbursement of the Freestyle Libre for people with type 1 diabetes in Ireland inclusive and without discrimination for all people with type 1 highlighted, and we will continue to work towards a successful outcome for all type 1s in our community and not just those of a certain age. We also continue to advocate for better diabetes services.

 

Out next goal now is to secure a date to meet with Minister Harris to present him with a copy of our petition and when we secure a date to do that we will let you know, you may want to join us ………

This is due to be brought up in the dail as topical questions to Minister Harris in the coming weeks and that will be televised. As soon as we get that, we will of course post it to our social media accounts.

Watch this space as each of us share what news we have with you all in our own unique and individual way.

Davina

You can find us here :

Grainne – Blood Sugar Trampoline
https://www.facebook.com/BloodSugarTrampoline/

Liz – Waterford Diabetes Support
https://www.facebook.com/waterforddiabetessupport/

Me – Davina – Diabetes T One
https://m.facebook.com/DiabetesT1Ireland/

 

 

davina-lyon

Im Davina Lyon, I’m not a professional, just a person With Type 1 Diabetes sharing experience.

*IMPORTANT INFORMATION*
For those who think diabetes is caused by an unhealthy lifestyle let me clarify a couple of things.
I have type 1 diabetes. It’s an autoimmune disease. Nothing I did, or didn’t do caused it and nothing I do will cure it. There’s is currently no cure for Type 1 diabetes.

Type 1 Diabetes happens because our own antibodies attack and destroy an organ in the body. it’s an autoimmune response where antibodies that normally fight disease mistake a part of our body
(the pancreas in this case) as foreign and attack to destroy it.
When those antibodies attack the insulin producing islets in the pancreas we stop producing insulin so we need to inject or pump it.

Without insulin a person with type 1 diabetes would die. At present it is not known what causes this to happen, and there is no cure.
A person with Type 1 diabetes MUST inject or pump insulin to stay alive.

There are many factors that contribute to a diagnosis of Type 2 diabetes so pre judgment of a lifestyle choice is unfair at very least.
A person with Type 2 diabetes, while still producing their own insulin for various reasons their body cannot use it correctly or efficiently.
These people are generally treated with oral medications and sometimes with insulin injections.

Please support me to help raise funds for
Thriveabetes or Diabetes Ireland.

Thriveabetes is completely organised by volunteers. The financial cost of Thriveabetes is subsidized through fundraising, event ticket sales, sponsorship and an adjoining exhibition.
If you would like to make a donation to Thriveabetes – we appreciate every single donation.

http://thriveabetes.ie/index.php/donate-2/

Diabetes Ireland have been a huge support to me and our Type 1 Community.

Diabetes Ireland Fundraising link :

https://www.diabetes.ie/fundraising/donate/

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