Hi EveryoneI took an unintentional break from social media since May for several reasons.
I’m in the process of moving house, from a standard detached bungalow to a real Canadian log cabin in the woods.
( my dream )
It has turned out to be a slow process with lots of potholes along the road of my journey, and a huge amount to organise before it’s finished.
Paperwork on my buyers side seems to have caused most of the delays but we are nearly there now.
Temporary accommodation with limited or sometimes no Wifi has restricted my access to social media, but Iv been very busy with solicitors and estate agents.
The stress of it all has been tough and there have been many tears shed along the way. My blood glucose has been erratic because of it all to the point that instead of sugar surfing I feel like Iv been riding a tsunami.
Since May Iv also had 2 insulin pump fails / malfunctions, which have been swiftly replaced by Medtronic within 5 hours, the first was a blank screen problem, the second was a battery compartment problem. Both were within a 2 week period.
Medtronic have been brilliant and at this point everything is going well.
One of my little dogs have died and at this moment I’m of “no fixed abode”
Having Type 1 Diabetes as well as coping with all this is a real challenge as eating properly and at regular times is not always possible. The other issue is all my diabetes supplies. There is just so much of it.
Infusion sets, sensors, test strips, reservoirs, tablets etc. All in a big box and then my clothes in 2 suitcases. Everything else is in storage since May.
Iv been pumping since just before last Christmas 2016 and that has been a bonus through this whole situation. It’s great just having the insulin on board and the enlite CGM sensor monitoring blood glucose 24/7. At least it saved me from diving for an insulin pen every time I needed insulin and finger pricking to check how I was doing.
I know it will all be worth it in the end but it’s hard to hold on to that thought when everything feels like it’s going wrong.
John has been working on our new website which we have just published, so I’m getting back on track slowly but surely.
Going forward we will continue to raise diabetes awareness and bring posts relevant to our diabetes community.
I made a conscious decision to leave some of the closed diabetes groups as I was only getting aggregated by some of the incorrect stuff I was reading in them. Instead of feeling supported by being in them, I was feeling confused and annoyed, and that just wasn’t good for me.
We remain dedicated to advocacy & awareness, we are always here to help by pointing you in the right direction for any information you require.
If you ever want anything posted please let us know.
John is in Tullow and I will soon be on the Kildare / Offaly border, near Edenderry if you ever want to meet for a chat.
For those who think diabetes is caused by an unhealthy lifestyle let me clarify a few things.
Type 1 diabetes is an autoimmune disease, nothing I did or didn’t do caused it and nothing I do will cure it. There is currently no cure for type 1 diabetes and no one knows what causes type 1 diabetes,
Type 1 diabetes happens because our own antibodies attack and destroy an organ in the body, a response when antibodies that normally fight infection / disease mistake a part of the body as foreign and attack and destroy it. When this happens to the islets in the pancreas we stop producing insulin so we need to inject or pump insulin in to live.
Without insulin a person with Type 1 diabetes would die.
There are many factors that contribute to a diagnosis of type 2 diabetes so pre judgment of a “lifestyle choice” Is unfair at very least.
A person with type 2 diabetes is producing insulin of their own but for many reasons their body cannot or does not use it correctly or efficiently.
People with type 2 diabetes are generally treated with oral medication and sometimes with insulin injections .
A person with type 2 diabetes injecting insulin does not mean they now have type 1 diabetes. Type 2 diabetes never becomes type 1 diabetes, they are 2 completely different conditions / diseases with similar symptoms and similar complications if not managed correctly.