So what if the FreeStyle Libre does not prove cost effective ?

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As most of you will know the Freestyle Libre was made available covered on our long term illness scheme during 2018 on a trial basis.
During that trial period the HSE would be looking for any possible blood glucose test strip use being reduced.

In short, when The Minister for Health made his seemingly good news announcement in January, not only was it discriminating against adults with type 1 Diabetes but it had an awful lot of strings attached to it, unlike other countries that made it available to anyone wanting to avail of it.

This is how it works, your pharmacist will have a record of the blood glucose strips you ordered and collected monthly, once that same customer orders the Libre on their LTI then they should have been ordering and collecting less blood glucose test strips monthly. This would automatically show the HSE that the Libre was cost effective.

But has that worked ?

Looking at some of the information we have received some people are testing at least 4 times daily while using the Libre that has been covered in their LTI, while others are testing less.

However on a patient by patient basis can you show that your test strip order and collection monthly  is reduced ?

What about those who had been self funding the Libre before it being covered on LTI, would this mean the reduction in test strip use happened during that time, once those folk moved to the Libre covered on LTI there would be no further reduction in test strip use, sure how could there be ?

So what happens if the Libre does not prove to be cost effective after 12 months data has been analyzed?
We don’t know the answer to this but we are afraid that maybe adults won’t be included in receiving the Libre covered on their LTI because it’s been proven that in the under 21 group less test strip usage has not materialized.

– Why has this not happened ?
– Was it lack of trust in the Libre?
– Was it that wearing the Libre was just a back up mechanism?

My feeling on this, is that it should have been given to a cross section of our diabetes community, with a stipulation ( if that’s what the HSE were looking for ) that after the first month or so, once a person was used to using it, they would then commit to it and order less test strips monthly or make a decision not to use it anymore and go back to regular blood glucose testing.

In short the Libre for those of us in Ireland was never going to be an “extra” option and would have come with an anticipation of Less test strips used per patient and if more were necessary then a cover letter from a diabetes consultant would have explained clinical need.

This whole Libre situation has been shrouded in grey areas since it was announced that the 4-21 age group would be covered.

Nothing about this has been Chrystal clear since the announcement was made back in January of this year, and there has certainly been no commitment to either continue it to those already getting it or extend it to adults.

I totally understand that as a parent of a child with type 1 diabetes, that person would have to be very diligent and responsible when managing a child’s blood glucose but what if the Libre is taken off LTI cover because of lack of cost effectiveness? Then everyone will be without it.

Is it even possible under the current circumstances that everyone presently getting the Libre covered on their LTI  have a responsibility to prove cost effectiveness for the sake of all who need it and are at present using it, also for the sake of those over 21 hoping to be included next year.

Please take a moment or two to read the latest answers we have received to parliamentary questions that have been asked in regard to this and you’l see why we are concerned.

Footnote :

FYI : Insulin pumps and CGMs are already covered on LTI

   

 

  

IMPORTANT INFORMATION*For those who think diabetes is caused by an unhealthy lifestyle let me clarify a couple of things.

I have type 1 diabetes. It’s an autoimmune disease. Nothing I did, or didn’t do caused it and nothing I do will cure it. There’s is currently no cure for Type 1 diabetes.

Type 1 Diabetes happens because our own antibodies attack and destroy an organ in the body. it’s an autoimmune response where antibodies that normally fight disease mistake a part of our body(the pancreas in this case) as foreign and attack to destroy it.When those antibodies attack the insulin-producing islets in the pancreas we stop producing insulin so we need to inject or pump it.Without insulin a person with type 1 diabetes would die. At present it is not known what causes this to happen, and there is no cure.A person with Type 1 diabetes MUST inject or pump insulin to stay alive.There are many factors that contribute to a diagnosis of Type 2 diabetes so pre judgment of a lifestyle choice is unfair at very least.A person with Type 2 diabetes, while still producing their own insulin for various reasons their body cannot use it correctly or efficiently.These people are generally treated with oral medications and sometimes with insulin injections.

Davina Lyon

 Co-Founder of Diabetes T One & A Diabetes Life

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