The Importance Of Advocacy and Support Within our Diabetes Community
During this summer there have been some reasons why I have taken some time to assess my position and activity in our community.
A few things have that happened have made me see how judgmental some of our online support groups can be and i will admit that it has shook me very badly.
Diabetes Community Ireland is an online support group that I am an admin of.
This is a support group where the judgmental will NOT be tolerated, I feel in a private group where only members can see what is posted, we should be able to speak freely as long as we are not being derogatory or slanderous about another individual.
I don’t tend to post very often to support groups, but when i do its generally with what i consider to be good news, a funny incidence, or the fact that Im in trouble and need help, sadly on one of these occasions i was met with judgmental comments that hurt and shook my confidence and self esteem very badly
However after much thought i do feel our community need people just like me, people who are NOT afraid to speak out, people who are not concerned about being politically correct, but are willing to say exactly what is on their mind about any injustice they see happening within our community.
We need people to Advocate together for whatever is needed and lacking in our community.
Diabetes Ireland has published its 2017 report and after reading it carefully, i noticed Kildare still has NO footcare for people with diabetes. In fact i spoke to someone recently who told me about a youth with a varruca on her foot and after seeking an appointment with a foot care professional they were told that in Kildare, only if your over 64 years old can you access free foot care.
This is something I found out a few years ago and sadly nothing has changed since. It seems if one of us hasn’t lost a foot or leg by the age of 64 then they will look at what we are left with at that stage,
NOW IS’NT THAT NICE OF THEM !!!!!
If this is something that you find unaceptable please write to the TD for your area, you can use “find my TD” to find out who yours is and make your feelings heard.
Why ? because sitting back and expecting everything to just come to us without a fight is a pipe dream that we cannot afford to indulge in.
No i am not criticising Diabetes Ireland here but i do need to point out that SBHI have a huge support from their very dedicated community, in short the daily interaction the regional branches have with their national charity is impressive and everybody gets on board with advocacy and awareness.
This is something iv found lacking within the Diabetes community and at times those actively advocating can be subject to a lack of support from the community in general.
WE NEED TO SUPPORT OUR NATIONAL CHARITY “DIABETES IRELAND” because its them who back us when we go forward with a campaign or cause we are fighting for.
Its them who create the correct way of moving forward with a campaign or cause.
For me now, going forward has to be done in a way that gets attention for whatever we are fighting for.
There was a time when I had a wish that a very strong and powerful film would be made and aired on our national TV for all to see, but this kind of thing can only be made possible with funding.
We are constantly fighting injustice and discrimination, examples of this is are:
The way freestyle libre was only made available to children and teens but not adults, thats age discrimination.
The type 1 model of care for adults has only just come into being, but the type 2 model of care and the model of care for children has been in existence for quite a while, more age discrimination.
Don’t even get me started on the HSE and foot care. Its like a post code lottery, and even more age discrimination, sure if we reach the age of 64 with 2 legs and 2 feet , only then will we get foot care as part of our overall diabetes care and entitlements, even though feet and legs are a high risk area when it comes to complications of living with diabetes of any type.
IM CALLING FOR ADVOCATES TO GET TOGETHER, WORK TOGETHER, AND REALLY MAKE A DIFFERENCE.
IM CALLING FOR EVERY PERSON WITH DIABETES OF ANY TYPE IN IRELAND TO BECOME A MEMBER OF OUR NATIONAL CHARITY.
IM CALLING FOR OUR TYPE 1 DIABETES COMMUNITY TO INTERACT WITH DIABETES IRELAND AND LET THEM KNOW WHAT WE NEED THEM TO TRY AND ACHIEVE ON OUR BEHALF.
IF YOU HAVE ADVOCACY IN YOUR BLOOD, PLEASE GET IN TOUCH WITH ME BY EMAILING firstname.lastname@example.org
TOGETHER WE CAN MAKE A DIFFERENCE !
I’m Davina Lyon, I’m not a professional, just a person With Type 1 Diabetes sharing experience.
For those who think diabetes is caused by an unhealthy lifestyle let me clarify a couple of things.
I have type 1 diabetes. It’s an autoimmune disease. Nothing I did, or didn’t do caused it and nothing I do will cure it. There’s is currently no cure for Type 1 diabetes.
Type 1 Diabetes happens because our own antibodies attack and destroy an organ in the body. it’s an autoimmune response where antibodies that normally fight disease mistake a part of our body
(the pancreas in this case) as foreign and attack to destroy it.
When those antibodies attack the insulin-producing islets in the pancreas we stop producing insulin so we need to inject or pump it.
Without insulin a person with type 1 diabetes would die. At present it is not known what causes this to happen, and there is no cure.
A person with Type 1 diabetes MUST inject or pump insulin to stay alive.
There are many factors that contribute to a diagnosis of Type 2 diabetes so pre judgment of a lifestyle choice is unfair at very least.
A person with Type 2 diabetes, while still producing their own insulin for various reasons their body cannot use it correctly or efficiently.
These people are generally treated with oral medications and sometimes with insulin injections.