What Happens When We Just Cant “Do” Diabetes Anymore ?
I’m writing this for those who think blood glucose in double figures is alright.
I’m writing this for those who think the complications of regular high blood glucose won’t affect them.
I’m writing this for those who don’t comply with their treatment, those who think living dangerously won’t have consequences in the future.
We get diagnosed, we deal with the shock and trauma of the diagnosis, we are enrolled in diabetes education, introduced to insulin and other medications, we deal with information overload and then if we are wise we do whatever we can to hook up and meet or chat online with others just like ourselves.
After crying many tears i started the journey of managing my type 1 diabetes, YES, i said manage and not control.
Im a firm believer that i never control my type 1 as there are so many things in my daily life that influence my blood glucose like stress, worry, hot weather, cold weather, being ill, exercise, and general daily exertion to name but a few.
I was taught how to MANAGE the ever fluctuation highs and lows of my type 1 diabetes, and do what ever i could to keep my blood glucose numbers within the recommended range.
But…… what happens when we just cant “Do” diabetes anymore ?
I get tired of the constant daily work, “yes work” thats involved in the management of type 1 diabetes. I want to eat like everyone else and not have to inject or pump insulin to cover that food or drink.
Personally from the day i was diagnosed my feeling was that “food was the problem” i couldnt just eat it and get on with what i had to do.
I clearly remember back in the early days of diagnosis, putting my lunch on the table and the Novo rapid pen beside it, all ready to inject and eat.
I looked at that picture for a very long time ( maybe an hour and a half ) threw my lunch in the bin and then put away the insulin pen.
Sorted, i thought !
However nothing was sorted because even without food blood glucose can rise for many reasons, sure isnt that why we take Lantus as well and novo rapid.
Lantus is our basel ( background ) insulin, the stuff that keeps us balanced between meals.
Novo rapid ( fast acting insulin ) doesn’t just cover and help process the carbs I eat, it also brings down and corrects my blood glucose if it’s high because of illness or the many other things that rise it daily.
I wasnt long about copping on though because ketones then became an issue, not to mention the fact that i got extremely hungry.
I often hear people say they dont want to hear the scary stuff, you know, the stuff about what happens if we dont keep the blood glucose numbers within the recommended range at least most of the time, if we just dont play by the rules.
Question for you …..
when someone learns to drive a car on the road, should they be made aware of the scary stuff, you know like “speed kills” “never drink and drive” “dont use your mobile phone while driving” ? of course they should because that should make them more cautious and aware of the dangers of not following the rules.
Why on earth are newly diagnosed people not made painfully aware on the day of diagnosis, of the dangers of not managing their diabetes?
Sight problems, healing problems, heart problems, stroke, dental problems, infections, kidney failure, diabetic ketoacidosis (DKA), Coma and death, etc.
I get really fed up and so tired of it all, my pump alarm waking me and my family during the night, the alarm when i go for a walk or even just hoover the house and it saying im going low.
The pump alarm repeating “high alert” after iv eaten chinese takeaway even though iv bolused correctly.
I often feel my pump is so unforgiving and judgmental, i feel like pulling it off sometimes and smashing it against a wall or f -c-ing it out a window, and then just eat what i want and not inject insulin, but what would i gain from that ?
Yes its true, i could swop my insulin pump or insulin pen for dialysis, blindness, a prosthetic leg or two and awfull shoes on them.
I could swop my insulin for a cardiac problem that wouldnt allow me to even walk to the other side of a room.
I could have a stroke and be paralised, never ever again having independance.
I could go into a coma and not be the same person waking up, if i woke up that is.
Death ? doesnt actually worry me because i wouldnt be here anymore, its the thought of ending up with no quality of life and no independance that keeps me on the straight and narrow, most of the time.
Now before anybody starts to tell me that this simply does not happen, let me tell you it does and i know these people.
Its when i take a few moments to calm down and think of the consequences of my actions that i reluctantly fall back in line and dutifully count my carbs and inject or pump my insulin.
I want quality of life to do the things that i enjoy the most.
Its ok to rebel a little, but talk to someone who understands what your feeling and then get back on track.
Stupidity is not an attractive trait …….
Manage your diabetes correctly
Im Davina Lyon, I’m not a professional, just a person With Type 1 Diabetes sharing experience.
For those who think diabetes is caused by an unhealthy lifestyle let me clarify a couple of things.
I have type 1 diabetes. It’s an autoimmune disease. Nothing I did, or didn’t do caused it and nothing I do will cure it. There’s is currently no cure for Type 1 diabetes.
Type 1 Diabetes happens because our own antibodies attack and destroy an organ in the body. it’s an autoimmune response where antibodies that normally fight disease mistake a part of our body (the pancreas in this case) as foreign and attack to destroy it.
When those antibodies attack the insulin producing islets in the pancreas we stop producing insulin so we need to inject or pump it.
Without insulin a person with type 1 diabetes would die. At present it is not known what causes this to happen, and there is no cure.
A person with Type 1 diabetes MUST inject or pump insulin to stay alive.
There are many factors that contribute to a diagnosis of Type 2 diabetes so pre judgment of a lifestyle choice is unfair at very least.
A person with Type 2 diabetes, while still producing their own insulin for various reasons their body cannot use it correctly or efficiently.
These people are generally treated with oral medications and sometimes with insulin injections.
Please support me to help raise funds for
Thriveabetes or Diabetes Ireland
Please support me to help raise funds for
Thriveabetes or Diabetes Ireland.
If you would like to make a donation to Thriveabetes – we appreciate every single donation.Thriveabetes is completely organised by volunteers. The financial cost of Thriveabetes is subsidized through fundraising, event ticket sales, sponsorship and an adjoining exhibition.
Diabetes Ireland have been a huge support to me and our Type 1 Community.
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